4.13.2008

Ella drew on the tip of her nose just a little bit ago -- with permanent marker. We usually don't have permanent markers within her reach since she doesn't know the difference between those and the washable ones that she can draw with all over herself. Cole has been using the permanent marker lately, though, and no one saw that they hadn't been put up. Ah well. It's not as if we have anything going on that requires no permanent marker on the face.

I wanted to expand on what I had written about Cory's aunt Pat earlier since I talked with Cory and he seemed to know a few more details. While we have no idea how successful the treatment could be, a lot of it depends on the organs affected by the protein since this protein basically harden whatever it attaches to. Unfortunately, Cory told me he believes it's affecting Pat's heart. Depending on which organs are affected, the life expectancy is usually 1-3 years. Pat has always seemed larger than life - so active, so social, the one planning events and keeping everyone in touch. She and Mary were probably fairly opposite since Mary was always quieter and didn't want to cause waves. I don't want to sound as if I'm writing her obituary already because she might have years and years left. We just don't know.

I'll end this brief entry on a slightly less serious note. How about something I'm grateful for tonight? I'm grateful for my pregnancy-induced stuffy nose that keeps me from smelling nasty diapers. Apparently Ella had one tonight that spread throughout the house. Diaper are washing right now so that will be taken care of, but it's nice to not have to smell it in the meantime.

1 comment:

Staying Home in Hampshire said...

Hi Amy

Sorry to hear about Cory's aunt, I hope you will get some good news about her health soon.

Did you take any pictures of Ella's nose? Sophie loves to draw on herself a lot - it must be a 2 thing!

I love reading your blog - thank you for sharing :)